“For over 25 years the consistent mission of the Fragile Kids Foundation is to enhance the quality of life and wellbeing of children with support, supplies and prescribed medical equipment not covered by Georgia Medicaid or private insurance for Georgia’s medically fragile children living with chronic illnesses, genetic and traumatic disorders and orthopedic and neuro-muscular challenges.
Our Goals: Fragile Kids strives to create safer, healthier lives for Georgia children living with a wide range of diagnoses, including: Cerebral Palsy, Muscular Dystrophy, Spina Bifida, Mitochondrial Disorder, Retts Syndrome, Angelmans and other genetic/traumatic injuries.
Assistance offered to families includes: wheelchair lifts, stair-lifts, and overhead lifting systems to safely transport children in wheelchairs, ramping for homes and vans, specialized car seats, toileting and bathing systems, gait trainers, standers, pediatric strollers and more through grant and loaded equipment initiative.
Eligibility: Georgia children, age birth to 21, with a medically fragile diagnosis (Cerebral Palsy, Spina Bifida, Muscular Dystrophy, genetic disorders, traumatic injury, genetic challenges, etc.”
Examples of assistance: Transport equipment, ramps, car seats, toileting, bathing systems, strollers/wheelchairs, positioning chairs, standers, gait trainers, therapeutic tricycles and bikes,ball-terrain wheelchairs, and the “UpSee”: a new therapy device. Click here for the details: Fragile Kids Foundation (pdf document)
Fragile Kids Foundation (website)
“Christian Royal is a young man with Down syndrome who struggles with single words and has yet to grasp basic addition or time. However, since his teen years, Christian has shown an interest in, and aptitude for, working with clay. Christian was unable to “do” school as other students did and began making pottery as part of his homeschooling program. Since his first lesson with Kris Neal of Fire And Earth Pottery, pottery has increasingly become the focus of his life. ” Check out http://www.christianroyalpottery.com/ for a gallery of his work as well as the opportunity to purchase some of his work.
I am regularly asked the question “Is there a LifeLine near me?” by people who live outside of Tennessee and Georgia. While LifeLine is a stand-alone organization, there are other organizations who offer services similar to LifeLine’s Special Education Services. To find an organization near you who provides services through the PTI (Parent Training & Information) grant or the CPRC (Community Parent Resource Center) grant from the US Department of Education, you can consult their master list of currently funded organizations. (This list does not included previously funded organizations like LifeLine who may still be providing services without a grant.)
Two free workshops hosted by Hamilton County Department of Education are coming up soon!
The Youth Success Academy is hosting a Work Connections Event for youth on Friday, October 17th 2014 at 10:00 at the Bank of LaFayette Community Room in LaFayette, Ga. This flyer has additional information.